Movers and Shakers: a podcast about life with Parkinson's

Freezing is one of PD's most unusual symptoms. Whether it's a threshold, a zebra crossing or just getting out of bed, the sudden inability to move can strike at any moment. Why does it happen? And is there anything that can be done to combat this mysterious immobilisation? The Movers and Shakers – who have experienced very different types of freezing – squeeze into the Notting Hill pub (and hopefully don't freeze in place) with top experts on what's known as Freezing of Gait (FOG) or, here at M&S Towers, Freezing of Everything (FOE).Movers & Shakers is brou...

After our festive break, the Movers & Shakers are back in the Notting Hill pub with glad tidings for the new year. Gillian and the Judge have been sunning themselves (in Antigua and Australia, respectively), Rory has been hitting the Vegas strip, Mark has been battling with Turkish Airlines, and Paul has finally completed shooting of his new film. But Paul isn't the only Mayhew-Archer bringing life with Parkinson's to the screen. His son, Simon Mayhew-Archer, is the creator of Can You Keep a Secret? a new sitcom (loosely) based on his old man. Simon joins the gang, along with...

It's the end of another year – and what a year it's been! From the Big Sing on World Parkinson's Day through the Parky Petition campaign and getting our debate in Parliament, 2025 has been a stellar year for the Movers and Shakers and our community. For this final episode before we tootle off for Christmas, we've gathered at Chez Lacey-Solymar (minus Gillian herself, who was struck down by flu) to recap our year. What were the best moments of the year that's been? And which episodes of the podcast affected us most?Sponsored by Albion Chambers.<br...

From our little corner of the Notting Hill pub, it can be hard to see what life is like for people with Parkinson's across the rest of the UK – let alone around the world! Today, however, we're talking about Parkinson's care in Africa, a continent where levodopa access is limited and where stigmas around the condition still impact countless lives. We're joined by experts – both in the pub and down-the-line from the frontline of treatment – to try and understand the situation and how the global community might collaborate to alleviate some of the suffering of African Parkies.Spon...

How do you run clinical trials that maximise the efficiency for patients, clinicians and drugs developers? That's the challenge being addressed by world's largest ever clinical trial of Parkinson's medications. To discuss this new, and potentially extremely effective, way of runnings multiple trials simultaneously, the Movers & Shakers are joined at the pub by some of the core team from the project, who answer their questions and consider whether this represents the future of clinical trials.This special episode is sponsored by Cure Parkinson's.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer...

So, after two long years of campaigning, this week the Parky Charter – our set of demands for the government – had its moment in Parliament. With the Movers & Shakers and other supporters in attendance, MPs debated the need for improved care for people with Parkinson's across the UK. But what were the important moments from the debate? What wasn't mentioned? And where do we go from here? To celebrate how far we've come and mull over our next steps, the gang gathered back at Gillian HQ (though she was regrettably laid up with a fever) where the Parky Charter was firs...

This week, the Movers & Shakers are joined in the pub by our friends from Cure Parkinson's and Parkinson's UK. They are two of the charities working so hard to find ways of dealing with Parkinson's and improving the lives of those with the condition. But they also face huge challenges. Is enough being invested in research? Are the charities forced to compete with one another for limited resources? And what is the rule of the Michael J. Fox Foundation, the huge American body that operates at a much larger scale than its UK counterparts? We're talking about all this – an...

We try not to shy away from the less cheerful topics here on Movers & Shakers, and this week we're once again looking at depression. We're joined in the pub by a top expert – Professor Dag Aarsland – to look at how depression affects Parkies, whether there's something specific about the condition that causes it, and what responses are available. As ever, this is a candid chat that gets to the heart of a matter which is too often left silent.If you'd like to download a template for writing to your MP, you can find one here.<b...

Let there be light! Well, certain types of light, at least. That's what we're discussing down at the Movers and Shakers Arms today, where the gang are joined by Professor Glen Jeffery, an expert in the use of light therapies. Why are some lights – like infrared – good for us, whilst others – like UV – are bad? How does light impact on our mitochondria? And, most importantly, what does any of this have to do with Parkinson's?! Join us for a fascinating dive into a less-discussed, but possibly very important, piece in the puzzle of searching for a PD disease modifier. <p...

Over the summer months, we at Movers & Shakers HQ ran a competition: the local group who acquired the most signatures towards the Parky Charter petition would get their own special episode. And here it is, with the superstars from the Bexhill and Battle area, who acquired a whopping 573 signatures! Three of them joined the Movers & Shakers in the pub, and we also speak to the TikTok poet whose viral video spurred the campaign on. But most importantly, this episode contains important instructions on what you – yes: you! – need to do next. Write to your MP, share your experience, and urge...

There are few great anxiety inducers for Parkies than the prospect of having a fall. Squeezed into the Notting Hill pub – having dodged bustling waiters, stray chair legs and a labyrinthine tangle of cables – the Movers & Shakers are joined by two experts, Laura Douglas from Neuro Heroes and the University of Exeter's Dr Will Young, to discuss the reality of falls. Are people with Parkinson's at greater risk? And, if so, what can we do to a) prevent falls, and b) mitigate the seriousness? Navigating our way, ever so carefully, through this issue should shine a light on how to s...

On today's Movers & Shakers, we're putting down our pints and rolling a joint talking about how cannabis could be an important part of Parkinson's treatment. Subject to stigma over its use, have we been ignoring the therapeutic qualities of the plant? To discuss this, we talk to Professor Mike Barnes, a world expert in medical cannabis, and hear from many of our listeners who have dabbled with the various strains. With uses for everything from pain to sleep, this is an in-depth look at a much-maligned treatment option.Sponsored by Albion Chambers.Presented...

Can you hide your Parkinson's? And should you? Those are the questions we're tackling today, as we're joined in the pub by Rob Burley, a former BBC producer and author of Why Is This Lying Bastard Lying to Me?, a book about the lost art of the political interview. After his PD diagnosis, Rob went on television and found himself subjected to unfortunate social media feedback. Do we always know when it's time to reveal a diagnosis? And can you really keep things private as symptoms set in? This candid chat explores the difficult reality, especially for people still...

This week, we're issuing a special episode to remember the life of John Stapleton, who died last week. We were privileged to have John join us in the pub earlier this year to discuss his life, career and PD journey. From getting pecked off our screen's by Rod Hull's intemperate Emu to making a film about his diagnosis with his award-winning documentarian son Nick, John led an extraordinary life. In this episode, we reflect on what made him a great presenter and a superb advocate for people with Parkinson's, and replay our conversation with him.Presented...

Parkinsonism is the term used to refer to a group of conditions – like multiple system atrophy (MSA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Lewy Body Dementia – which resemble Parkinson's in some of their symptoms. To discuss these sibling conditions, the Movers & Shakers are joined at the pub by guests from across the spectrum who share their stories – often very uplifting – about learning to live with the new realities brought on by their illnesses.Sponsored by Albion Chambers.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy P...

The Movers and Shakers are back in the pub after a relaxing summer. Oh, who are we kidding? It's been a frantic struggle to get the #ParkyCharter petition to 100k signatories but we – which is to say: you – did it! Now we're kicking off the new series with a look at Gillian's big news. She's had the brand new produodopa pump installed. But is it the blessing its champions suggest? Or do the downsides outweigh the positives? To discuss, we're joined by international expert Professor Camille Carroll, as well as hearing some testimony from other users.Spon...

Our final profile of this summer series has a very particular set of skills... Jagdeep Aujla is a London-born karate champion and martial arts enthusiast who, since his Parkinson's diagnosis, has established the Dopamine Warriors Boxing Club. Jagdeep joins the Movers & Shakers in the pub and shows all the resilience you'd expect from the Bruce Lee of PD – but also some cheering optimism about embracing the challenges of the condition and fighting through.Sponsored by Boardwave, who support Cure Parkinson's.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn an...

Our profile this week is of a Parky on a mission: Alison Anderson who is, as you listen to this episode, cycling across America to raise money for Cure Parkinson's. This isn't Alison's first marathon bike ride, she's previously zoomed across Southeast Asia, raising money and awareness. An inspiration for both her athletic endeavour and fundraising prowess, Alison is living, cycling proof that Parkinson's doesn't have to stop you in your tracks!You can still sponsor Alison's bike ride across America – go here to send your support!Sponsored by Boardwave, who support Cure Pa...

This Wednesday, our titanic campaign to reach 100,000 signatures on the Parky Charter petition reached its climax. After a marathon effort involving Gillian commandeering EasyJet planes, the Judge haranguing cricket-goers at Lords, and an unexpected segue into TikTok virality, that target was reached. To celebrate, we gathered 80% of the Movers & Shakers at Gillian's to raise a glass of bubbly – and were delighted to be joined by some very special guests who had gone the extra mile to get signatures!Don't stop signing Parky Charter petition! You can do so by going to ParkyPetition.com!Sp...

In a long and varied career, John Caulcutt has worn many hats: rock musician, stockbroker, marketing man, bobsled champion, fundraising extraordinaire, and, since 2019, parky. He joins us for this, the latest in our summer interview series, to discuss a life well-lived and how he ended up a prolific philanthropist who believes that a breakthrough for PD could be just around the corner...Don't forget to sign the Parky Charter petition by going to ParkyPetition.com!Sponsored by Boardwave, who support Cure Parkinson's.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell...